Donations pour in for Bob Saget’s favorite charity

Joanne Gold, executive director of the Scleroderma Research Foundation (SRF), shared her gratitude with CNN on Thursday for the support. every donation made in honor of Saget, Gold said.

“We received donations from over 1,500 donors around the world, totaling over $ 90,000 – before announcing the game,” Gold said in a statement. “Other people inspired by Bob have contacted us to raise funds in his honor.”

For example, she said, the Fredericksburg Nationals, a minor league baseball team in Virginia, want to honor Saget in their “Legends Never Die” game, while another Saget fan wants to fundraise. streaming funds on the Twitch platform.

Saget, who died on Sunday at the age of 65, lost his beloved sister, Gay, in 1994 following a battle with scleroderma, a rare autoimmune disease.

The loss motivated him to raise money for research and advocate for a cure.

Ironically, the comedian and actor first got involved with SRF before his sister was diagnosed with a chronic illness, which can lead to hardening and tightening of connective tissue and skin.

Saget told NIH Medline Plus Magazine in 2019 that years before his sister got sick, he “got a call from someone I didn’t know asking me to organize a comedy fundraiser for an illness that I knew very little “.

“I said yes and hosted the event, which featured Ellen DeGeneres, Rosie O’Donnell and others,” he said. “I had no idea that a few years later my sister would be diagnosed with the disease.”

Saget explained that her sister was 44 and was a teacher in the Philadelphia area when she was first diagnosed. Drugs including prednisone and cortisone were used to treat her, he said, but that only treated her symptoms.

“She had to move to Los Angeles to live with my parents because she needed so much help,” Saget said. “She passed away two years later.”

The host of “America’s Funniest Videos” served on SRF’s board of directors for almost two decades and organized their events for over 25 years.

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